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Philippines
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Patients association >> Visit this website
Psoriasis Philippines
Created in 2005, 600+ members.
Psoriasis Philippine Online Community, Inc. (Psorphil Online) is a duly SEC registered non-stock-non-profit organization. With its membership numbering more than 600, PSORPHIL is a community of people with psoriasis, their families, friends and doctors from reputable medical institutions. Its mission is to support people who have psoriasis to become productive, self-reliant, and to significantly improve their quality of life. To achieve its mission, Psorphil Online has initiated the C-A-R-E-S program over the past two years.
CONNECT Psorphil Online is now an official member of International Federation of Psoriasis Association (IFPA). Being the 29th member of the organization, Psorphil, strives to give nonprofit psoriasis associations a voice on behalf of the people who have psoriasis and psoriatic arthritis and explore the challenges psoriasis presents to the international psoriasis community. • Psorphil celebrates World Psoriasis Day every October 29 since the year 2005. Respected Doctors and people who have psoriasis together with their families and friends meets up every October to showcase Hope and Unity among its members to the World. This is a fun-filled event that aims to reach out to other people who have psoriasis and to provide psoriasis awareness to the general public.
ADVOCATE • PSORPHIL LIVELIHOOD ASSISTANCE NETWORK (PLANET) aims to assist the economically challenged members of the psoriasis community with livelihood assistance. In line with our mission, we aim to educate them for sustainability and encourage them to build a healthy future for themselves and their family. Nominees from different Psoriasis Support Groups will be given the chance to be a PLANET Grantee.
RESEARCH • Psorphil Online coordinates with Top Pharmaceutical Companies to form study groups to find the best management/treatment, if not cure, for Psoriasis. • Psorphil has its own scientific committee that religiously research and study the present treatments available.
EDUCATE • Through Psorphil’s effective campaign, together with its media partners, the public learns more than just knowing that psoriasis is not contagious. They discover that people who have psoriasis can live normally and productively if they will be given a chance by the community.
SUPPORT • Psorphil supports its members thru constant communications and information. The family atmosphere that the community has developed has been most conducive for supporting one another.
Contact information: Psoriasis Philippines
Coordinator: Mr. Josef De Guzman
Address: 2121B Luna St., Pasay City, Philippines
Tel: +632 8334303
Fax: +632 8334303
Email: josef@psorphil.com
Website: http://www.psorphil.com
Language: English
France
There is more than 3400 dermatologists per 60 millions of inhabitants in France. 92 % of them are in private practice and 8 % of them are in hospital.
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Patients association >> Visit this website
Association Pour la Lutte Contre le Psoriasis
The APLCP (Association Pour La Lutte Contre le Psoriasis) is a French patient association created in november 1983.
Contact information: Association Pour la Lutte Contre le Psoriasis
Coordinator: Dalila Sid-Mohand
Address: Hopital Saint-Louis - Pavillon Bazin - 1 avenue Claude VELLEFAUX 75010 Paris
Tel: 01 34 42 09 01
Email: aplcp@hotmail.fr
Website: http://www.aplcp.org/
Language: français -
National psoriasis medical group >> Visit this website
Groupe Français du Psoriasis
The French Group of Psoriasis is a thematic group of the French Society of Dermatology.
The goals of the Group is to :
- Develop clinical and therapeutic research projects.
- Organize a French symposium on psoriasis each year but not the year of the international congress.
Contact information: Groupe Français du Psoriasis
Coordinator: Pr Louis DUBERTRET
Address: Hôpital Saint-Louis - Pavillon Bazin - 1 av. Claude Vellefaux 75010 Paris
Tel: +33(0)1 53 72 20 60
Fax: +33(0)1 53 72 20 61
Email: clubfrancaisdupsoriasis@gmail.com
Website: http://www.psoriasis-international.org/gfp/
Language: français
Germany
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Patients association >> Visit this website
Psoriasis Selbsthilfe Arbeitsgemeinschaft e.V. (PSOAG)
Created in 1997, 3500 members.
PSOAG is an umbrella organisation of 12 regional, independent patient groups. There is a central (Psoriasis Buero Berlin), where everybody can get informations and consultations - free and without membership! All necessary informations will be open exchanged between the groups.
We are the pioneers of the German Psoriasis Community in the world wide web. Our organisation is absolutely independent. In Germany the health insurance companies have to give money to patient associations like us - by law! Our positions are strict justified by the interests of psoriasis patients: factual, critical and true.
We are working all unsalaried - there are no high paid managers or functionaries. Our interest is to bring a good service to us, the psoriasis patients. We are not interested in a high number of members or in the best position as a lobby in the politics.
Contact information: Psoriasis Selbsthilfe Arbeitsgemeinschaft e.V. (PSOAG)
Coordinator: Mr. Rolf Blaga
Address: Schmitzweg 64
Tel: ++49 30 61 28 30 90
Fax: ++49 30 61 28 30 90
Email: info@psoriasis-selbsthilfe.org
Website: http://www.Psoriasis-Selbsthilfe.org
Language: Deutsch -
Patients association >> Visit this website
Deutscher Psoriasis Bund e. V.
Created in 1973, more than 7.000 members.
The German Psoriasis Association was established in 1973. Today we have more than 7.000 members. In 35 regional groups, teams of volunteers organize meetings and lectures and help you with your personal problems. Additional we have more than hundred contactpersons all over Germany, who are willing to let you take part of their experiences. Our office is the central advice and direction facility where you can get information as well as the phone numbers of our regional groups and contactpersons in your area.
We represent the interests of the people with psoriasis in the Federal Republic of Germany and stand up for all their concerns in the society. We want to:
- Improve the health care of all people with psoriasis
- See the psoriasis fully accepted as a disability
- Enlighten the public about our disease
- Bring forward the research about the reasons and the treatment options of the psoriasis and collect and communicate the information
- Activate the collaboration with other national or and international Self-Help-Organisations
We helped the treatment option Fumarderm® to be accepted in Germany and ended the discrimination of people with psoriasis in the bathorder.
With more than 7.000 members we are a large Self-Help-Organisation but that is not enough. Because the duties and responsibilities for the concerns of the people with psoriasis are increasing constantly, we have to increase our number of members. You can do something for yourself and your 3 Million fellow sufferers: Become a member of the German Psoriasis Association, contact us.
Contact information: Deutscher Psoriasis Bund e. V.
Coordinator: Hans-Detlev Kunz
Address: Seewartenstraße 10
Tel: +49/40/2233990
Fax: +49/40/22339922
Email: info@psoriasis-bund.de
Website: http://www.psoriasis-bund.de
Language: Deutsch
Demonstration zone
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National dermatological society >> Visit this website
Website example
This website is an online demonstration of what you can achieve using our website engine.
Contact information: Website example
Email: weboffice@psoriasis-international.org
Website: http://www.psoriasis-international.org/example/
Language: English
Italy
Country population: 58 000 000
Number of dermatologists: 3 500
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Patients association >> Visit this website
FEDIPSO onlus
FEDIPSO is the Italian Umbrella Organization of the non-profit Psoriasis Patients’ Associations.
The Federation is independent from pharmaceutical industries and laboratories, and does not receive any income from them.
The Federation is recognized by law as a "Non-Profit Public Utility Organization" and associate only patients’ associations with the same characteristics.
With the member associations it works for the patients’ rights and has activities like to:
- organize meetings for patients to better inform without external or market influence;
- produce newsletters for patient’s information;
- coordinate the common activities;
- sign for common facilities for the patients;
- promote the collaboration with the other organization and between the associations;
- elaborate and present proposals of new laws regarding the psoriasis patients;
- keep the contact with the governmental institutions;
- represent the patients in the public committees;
- promote research programs and the public information;
- legally help the members;
- collaborate with other national or foreign associations or organizations with similar objectives;
- and many other ...
Contact information: FEDIPSO onlus
Coordinator: Pierluigi Pennati
Address: Via Garibaldi, 65 - 20099 Sesto S.G. - Milano
Tel: +393389646500
Fax: +3902700406203
Email: info@fedipso.it
Website: http://www.fedipso.it
Language: italiano -
National psoriasis medical group >> Visit this website
Psocare - AIFA
Created in 2005, 152 members.
Psocare is a network of dermatological centers established in Italy in 2005. The network was prompted by the Italian Agency of Medication (AIFA) with the aim of improving knowledge about the efficacy and safety profiles of new systemic treatment for psoriasis.
The Psocare Centers are identified by regional governments as reference centers for psoriasis. The Psocare Programme links the prescription of new systemic treatment for psoriasis with the provision of data through a web-based database. Registered patients are followed-up for a minimum of three years.
Contact information: Psocare - AIFA
Coordinator: Centro Studi GISED
Address: USC Dermatologia - OO.RR. - Largo Barozzi, 1 - 24128 Bergamo
Tel: 0039035400625
Fax: 0039035269603
Email: info@psocare.it
Website: http://www.psocare.it
Language: italiano -
Patients association >> Visit this website
ADIPSO
Created in 1989, 20000 members.
A.DI.PSO. (Association for the Defence of Psoriasis Patients) was founded in November, 1989, with the aim of providing positive assistance to people affected by psoriasis.
The main objective of A.DI.PSO. has always been to increase public awareness on the specific problems of the disease, to promote initiatives in the interest of patients and inform them on the latest treatments available both in Italy and abroad.
Among its many concerns, the Association has constantly worked for having psoriasis and arthritic psoriasis officially recognized as a social, as well as a disabling disease. This objective was finally realized thanks to the regular “presence” of the Association in the Ministry of Health and Welfare in Italy.
A.DI.PSO. also contributed to the development of the research program of the Institute of Reumatology in the University of Rome “La Sapienza” on the methods for evaluating the severity of the functional deficit of arthritic-psoriasis patients.
The Association has also collaborated with the genetics group of the University of Rome “Tor Vergata”, involved in the study of family segregation caused by psoriasis.
A.DI.PSO also encourages regular meetings with patients to promote a dialogue and an exchange of ideas and experiences in order to try to improve the patients’ quality of life.
A.DI.PSO.’s President, Dr. Mara Maccarone, was appointed as President of the “PAN European Psoriasis Patients’ Organizations Forum” (PE.Pso.POF). She is also President of FIMDe (Italian Federation Dermatological Diseases) and has been elected to the Executive Board of the EPF (European Patients’ Forum), based in Brussels, to represent Psoriatic Patients in EUROPE. Active member and participant to several annual conferences, she has also been involved in the organization of many important events/congresses, in particular for what concerns Dermatology Congresses. In June, 2005, she was nominated “Honorary Member” of the Italian Scientific Societies of Dermatology, SIDeMaST and ADOI.
In 1993 A.DI.PSO founded a journal that is now published every three months and sent to its members as well as dermatologists and family doctors. The journal has a circulation of 250.000 copies and aims at informing, in a systematic manner, all parties on the various developments within the field of Psoriasis.
Contact information: ADIPSO
Coordinator: Mara Maccarone
Address: Via Tacito 90
Tel: +39063211545
Fax: +39063211545
Email: mara@adipso.org
Website: http://www.adipso.org
Language: italiano
United Kingdom
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Psoriasis and Psoriatic Arthritis Alliance (PAPAA)
Created in 1993, 1000+ members.
PAPAA is independently funded and aims to be a definitive source of information and educational material for people with psoriasis and psoriatic arthritis in the UK. To be a support to both patients and professionals by providing material that can be trusted (evidence based), which has been approved and contains no bias or agendas. We will be looking to provide positive advice that enables people to be involved as they move through their healthcare journey in an informed way, which is appropriate for their needs and any changing circumstances.
Service provided
Information service, advice and support for people affected by psoriasis and psoriatic arthritis, including carers and healthcare providers. Free information is available and twice yearly magazine called ’Skin ’n’ Bones Connection is available on subscription.
Target group
People with psoriasis and/or psoriatic arthritis, carers and healthcare providers.
Contact information: Psoriasis and Psoriatic Arthritis Alliance (PAPAA)
Coordinator: David Chandler
Address: PO Box 111, St Albans, Herts, AL2 3PX. UK
Tel: 00 44 1923 672837
Fax: 00 44 1923 682606
Email: info@papaa.org
Website: http://www.papaa.org
Language: English
IRAN (Islamic Republic of)
Country population: 80.000.000
Number of dermatologists: 600
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National psoriasis medical group >> Visit this website
Iranian National Psoriasis Society
Created in 2007, 30 members.
This data will be completed as soon as possible.
Contact information: Iranian National Psoriasis Society
Coordinator: Prof. Cheida Chams Davatchi
Address: Razi Hospital - Vahdate Eslami Ave. Theran Iran
Tel: +9821-5561-8989
Fax: +9821-5561-8989
Email: chamsc@yahoo.com
Website: http://www.psoriasis-international.org/tums/
Language: فارسى
Colombia
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Patients association >> Visit this website
Fundación Colombiana de Psoriasis
Created in 2004, 250 members.
Colombian Psoriasis Foundation is a non profit institution with the mission to give colaboration, information and support to people with psoriasis in Colombia. The Foundation is independent of pharmaceutical laboratories and does not receive any income from them. The Foundation has a website where people with psoriasis can be affiliated and the Foundation sends them a monthly newsletter with news and information on treatments, research on psoriasis. The foundation has a section where patients ask the experts on psoriasis matters. The Foundation also receives informartion on collateral injuries due to the prescription of new therapies like biologics. The foundation is conforming a group of doctors and other professionals as advisers to the institution.
Contact information: Fundación Colombiana de Psoriasis
Coordinator: Jaime Aldana
Address: Calle 116 # 15B-53 Of. 701
Tel: 571 7509486
Email: info@psoriasiscolombia.com
Website: http://www.psoriasiscolombia.com
Language: Español
Spain
Country population: 45 million
Number of dermatologists: approx 2000
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National psoriasis medical group >> Visit this website
Grupo Español de Psoriasis de la Academia Española de Dermatología y Venereología
Created in 2004, 30 members.
The Spanish Psoriasis Group of the Spanish Academy of Dermatology and Venereology was founded in 2004 and has the following aims:
1. To foster scientific knowledge on psoriasis pathogenesis, epidemiology, genetics, clinical manifestations, psychosocial implications and therapy.
2. To promote personal relationship among specialists in psoriasis
3. To facilitate the participation of Spanish dermatologists specialized in psoriasis in national and international societies focused on psoriasis
4. To promote scientific research in psoriasis
5. To promote the collaboration with basic research scientists in common projects and scientific exchange
6. To cooperate with health authorities, scientific societies, academic institutions, health care facilities, patient associations, teaching units, pharmaceutical companies, publishing companies, scientific foundations, communication media and other relevant institutions in order to achieve the aims of the Group
7. To produce didactic material on any format or support that might contribute to improve the knowledge, divulgation and management of psoriasis within our medical specialty
8. To organize and promote courses, seminars, lectures, symposia aimed to continued medical education on psoriasis
9. To create, support and sponsor grants, awards, travel grants, teaching exchanges and fellowships aimed to promote research projects or professional perfectionment in psoriasis
10. The group is a non-profit organization
This Group is national in scope and membership, collaborates with and depends on the Spanish Academy of Dermatology and Venereology.
Membership is restricted to the standing members of the Spanish Academy of Dermatology and Venereology who share the aims of the Group and request it in writing. Non-dermatologists specialized in psoriasis can become Associate members of the Group if sponsored by two members of the Ruling Committee. In both cases effective membership requires the approval of the Ruling Committee.
Contact information: Grupo Español de Psoriasis de la Academia Española de Dermatología y Venereología
Coordinator: Dr. Luis Puig
Address: AEDV. Ferraz 100, 1º izq. 28008 Madrid
Tel: +34-915446284
Fax: +34-915494145
Email: psoriasis.aedv@gmail.com
Website: http://www.aedv.es/grupo_psoriasis/home.htm
Language: Español
Argentina
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AEPSO
Created in 2004, 6000 members.
AEPSO is a non-profit organization dedicated to improving the quality of life of people living with psoriasis and psoriatic arthritis, we fight discrimination and self-discrimination, and seek awareness and understanding from the community and health authorities.
AEPSO offers legal council and support groups; gives talks and workshops; participates in international events related to dermatology, rheumatology and other patients associations; has a website and a free phone line to hear and orient patients.
We encourage patients to go to doctors for accurate diagnosis and treatments, and to avoid fake doctors and "magic cures".
Contact information: AEPSO
Coordinator: Silvia Fernandez Barrio
Address: Av. de Mayo 749 8°
Tel: +54 11 4342 1874
Fax: +54 11 4342 8328
Email: info@aepso.org
Website: http://www.aepso.org
Language: Español
Egypt
Country population: 76 millions
Number of dermatologists: 3000
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National dermatological society >> Visit this website
Egyptian Society of Dermatology and Venereology, Division of the Egyptian Medical Association
Created in 1951, 3000 members.
The Egyptian Society of Dermatology and Venereology (ESDV) is a subdivision of the Egyptian Medical Association (EMA) and is one of the four specialties that founded the EMA in 1920.
The ESDV goal is excellence in practice and ethical conducts of its 3000 members.That is achieved by providing continued medical education through an annual conference and a summer meeting held in January and June. Workshops and special courses are organized for the members who must have at least one of the different specialty university degrees (Diploma, M Sc. and MD in dermatology and venereal diseases).
The financial support is provided by the members and the pharmaceutical industry. The society offers grants for young researchers. The "Egyptian Journal of Dermatology and Venereology" is a periodical hard copy of the ESDV and it is the major supporter of the "Egyptian Dermatology Online Journal" (EDOJ)at http://www.edoj.org.eg/.
Contact information: Egyptian Society of Dermatology and Venereology, Division of the Egyptian Medical Association
Coordinator: Professor Mohamed-Hany El-Tonsy
Address: 5, Al-Thawra Square, Dokki 12311, Giza, Egypt
Tel: +20-2-333-76284
Fax: +20-2-333-76463
Email: ruhet@internetegypt.com
Website: http://www.psoriasis-international.org/esdv/
Language: English
Finland
In Finland, psoriasis is estimated to affect some 150 000 people.
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Patients association >> Visit this website
Psoriasisliitto
Created in 1975, approximately 14 000 members.
The Finnish Psoriasis Association works to support people affected by psoriasis and psoriatic arthritis in Finland and to promote their interests. Founded in 1975, the Finnish Psoriasis Association acts as the central organisation for over 50 local psoriasis associations around the country and has a membership of 14 000.
The Finnish Psoriasis Association has its central office in Helsinki. It also has five regional offices, which cooperate closely with the local associations. The regional offices are located in Helsinki, Turku, Tampere, Kuopio and Oulu.
The Finnish Psoriasis Association provides the following services in cooperation with the local associations:
training courses on the basics of psoriasis
rehabilitation and guidance on treatment,
phototherapy and climate therapy
information materialThe Finnish Psoriasis Association also works to inform the general public about psoriasis and to promote awareness and understanding towards people with psoriasis. It also gives advice and arranges training courses on psoriasis and its treatment. Acting as the interest group of people with psoriasis in Finland, the Finnish Psoriasis Association strives to promote access to effective therapies and to promote the interests of psoriasis patients in social security issues, including compensation policy for medications.
The Finnish Psoriasis Association supports the local associations in their activities. An important aspect of the local activities are support groups and support person networks. They help to connect psoriasis and psoriatic arthritis patients with each other to educate each other and share experiences. Additionally, the family members and friends of people with psoriasis are welcome to participate in the training activities. The local associations also operate sports groups and arrange other recreational activities for their members.
The Finnish Psoriasis Association has a separate section for the youth, called Nupso. It organises events dedicated to the youth. These include trips, camps and get-togethers. The aim of Nupso’s activities is to reach young people with psoriasis (under 30 years of age) and to bring them together, helping them to realise that they are not alone with the disease.
Rehabilitation centre Kuntoutumiskeskus IHO The Finnish Psoriasis Association owns a rehabilitation centre, Kuntoutumiskeskus IHO, located at Fredrikinkatu in Helsinki. The rehabilitation centre provides training and rehabilitation services for people with psoriasis and psoriatic arthritis and with other skin diseases.
Contact information: Psoriasisliitto
Coordinator: Ingemo Törnroos
Address: Fredrikinkatu 27 A 3
Tel: +358 9 2511 900
Fax: +358 9 2511 9088
Email: liittotoimisto@psori.fi
Website: http://www.psoriasisliitto.fi
Language: suomi
Hrvatska/Croatia
Country population: 4,5 millions
Number of dermatologists: 180
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National psoriasis medical group >> Visit this website
Croatian Psoriasis Working Group
Created in 2008, 30 members.
The Psoriasis Patient Association has many experience sharing, discussions, and meetings as well as symposiums with Slovenian and Italian patient association. The close collaboration in clinical and therapeutical studies was with colleagues from Health Resort Veli Lošinj, Croatia (Danijel Živković, MD, Branko Vukelić, MD). Yet, more than 20 Croatian dermatologists/venereologists in Zagreb, Osijek, Split and Rijeka have been actively engaged in the national and international surveys and management of psoriasis. The Croatian Dermatovenereological Society (CDS) has about 180 members. On National Congresses and Meetings thema on psoriasis was always well represented. The official journal CDS is “Acta Dermatovenerologica Croatica” in which CDS members very often published scientific studies, diagnostic and therapeutic achievements on psoriasis. Every year we organize Croatian-Italian meeting on psoriasis.
Contact information: Croatian Psoriasis Working Group
Coordinator: Aida Pašić
Address: Šalata 4
Tel: +385 1 4552 333, local 137
Fax: +385 1 4920 014
Email: aida_pasic@yahoo.com
Website: http://www.psoriasis-international.org/cpwg/
Language: hrvatski
Czech Republic
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Psoriatic and Atopic Eczema Association Czech Republic (SPAE CZ)
Created in 1989, 500 members.
In Czech Republic, there are about 500 active members of the Czech Psoriatic and Atopic Eczema Association, established 1990. We work as a voluntary and non-profit civic association. Our Psoriatic and Atopic Eczema Association meets the needs of all citizens who are afflicted with these dermatic deseases. Those who are involved in the activities of our association either from the human or career perspective can become our members too.
What is our purpose?
- We want to improve the forms of treatment and reach better social & economic living conditions for these disabled citizens
- We want to inform them about medicines cosmetics and alternative ways of treatment
- We want to carry out edifying activity through the media
- Exchange experience among individual members of our Psoriatic and Atopic Eczema Association
- To establish contacts with european partners
- To organize curative seaside stays
- With doctors and expert sites of some universities
- With similar European patient organizations
- With pharmaceutical companies and cosmetics manufacturers & dealers
- With the government subcommittee for the legislative preparation – with the national council for the handicapped
- Via club activities of the Psoriatic and Atopic Eczema Association
- Once a year on the occassion of the National congress
- On various actions organized by Psoriatic and Atopic Eczema Association, curative seaside stays and so on
- Via bulletin issued six a year for the members
- Exchange of the personal experiences on various members meetings
Contact information: Psoriatic and Atopic Eczema Association Czech Republic (SPAE CZ)
Coordinator: Josef Pohunek
Address: P.O.Box 15,CZ 14100 Prague 41
Tel: +420607916860
Email: pohunek@gmail.com
Website: http://www.spae.cz/
Language: čeština
POLAND
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Patients association >> Visit this website
Polish Psoriasis Association
Created in 1993, 300 members.
There is presentation in english, french and deutche version on our website.
We cooperate with second one psoriasis organization in POLAND:
http://stowarzyszenie.luszczyca.org.pl/
and patients website forum:
Contact information: Polish Psoriasis Association
Coordinator: Janusz Jagiello
Address: ul. Mlynska 14A 20-406 Lublin POLAND
Tel: +48-(81)-7400505
Email: janusz1968@o2.pl, luszczycalublin@interia.eu
Website: http://www.luszczycalublin.republika.pl
Language: polski
Austria
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Patients association >> Visit this website
PSO Austria
Created in 1981, 500 members.
monthly meetings
lectures
newsletter
Contact information: PSO Austria
Coordinator: Renate Reichl
Address: 1200 Wien, Jägerstraße3/2
Tel: 0043/1/3324003
Email: pso.austria@aon.at
Website: http://www.pso-austria.at.tt
Language: Deutsch
Nederland
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Patients association >> Visit this website
Psoriasis Vereniging Nederland
Created in 1974, 8000 members.
http://www.pvnnet.nl is the website of the Dutch Psoriasis Patients Association: Psoriasis Vereniging Nederland (PVN).
The PVN is the national psoriasis association of the Netherlands.
The PVN gives information about psoriasis, by meetings, by telephone (psoriasis-information-phone)by their magazine ’Psoriasis’ and their website.
Every two years the PVN celebrate the National Psoriasis Day by organizing a big patients meeting.
Contact information: Psoriasis Vereniging Nederland
Coordinator: Secretary of the PVN
Address: Diepenhorstlaan 2H 2288 RIJSWIJK
Tel: ++31(0)70 3838003
Email: secretariaat@pvnnet.nl
Website: http://www.pvnnet.nl
Language: Nederlands
BELGIUM
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GIPSO asbl
Created in 1990, 400 members.
"GIPSO asbl" is a patients association founded in 1990. Its aim is to inform the general public about psoriasis and to promote awareness and understanding towards people with psoriasis and psoriatic arthritis.
GIPSO is structured in local groups in the French speaking part of the country and in Brussels. These groups promote mutual help and support by holding monthly informal meetings called "Entre nous" where people suffering from psoriasis or simply concerned by the disease are invited : in a friendly atmosphere people freely talk about their everyday life, the treatments they tried, the effects of these treatments, ... in two words : their personal experience as psoriatic patient or with psoriatic patients.
GIPSO strives to promote access to effective therapies and support and keep the interests of psoriasis patients in social security issues, relations and problems with authorities, employers, ... It supports also the research by giving grants to students for quality works in close relation (or not) to this disease.
GIPSO organises conferences with dermatologists or other specialists involved in treatments of psoriasis patients. It also participates into events like fairs or exhibitions dedicated to health & wellness, TV & radio spots or programmes. It organises also various activities during the "World psoriasis day" on 29th October each year.
GIPSO takes advice of a scientific committee composed of eminent specialists in dermatology, psychology, pharmacy, medecine of work ... from different belgian universities for all its important choices, decisions and methods.
Contact information: GIPSO asbl
Coordinator: Jean-Marie DISPAS
Address: rue des Aubépines, 16, B-4053 Embourg (Belgium)
Tel: (+32)-(0)43650738
Fax: (+32)-(0)43650738
Email: info@gipso.info
Website: http://www.gipso.info
Language: français
Israel
Country population: 7000000
Number of dermatologists: 350
The prevalence of psoriasis in Israel is between 2 - 2.5%.
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National psoriasis medical group >> Visit this website
Psoriasis Group in Israel
Created in 2008, 11 members.
The group is composed of dermatologists from several medical centers in Israel whose clinical and research field of interest is psoriasis.
The aim of the group is to enrich the knowledge base of psoriasis and to enhance research cooperation between dermatologists.
Contact information: Psoriasis Group in Israel
Coordinator: Lev Pavlovsky MD PhD.
Address: Dermatology Dept. Rabin Medical Center, Petah Tikwa, Israel
Tel: +97239376652
Email: pavlovsk@bgu.ac.il
Website: http://www.psoriasis-international.org/psi/
Language: English
MEXICO
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Patients association >> Visit this website
Asociación Mexicana contra la Psoriasis
Created in 2003, 900 members.
The Asociación Mexicana contra la psoriasis (AMCPSO) was created in 2003 by patients with psoriasis and their relatives with the purpose of helping each other with the burden of the illness and improve their quality of life.
As an association AMCPSO offers through its website (www.asociacionpsoriasis.com.mx) information about psoriasis, advise through its medical board of dermatologists and a Forum to discuss concerns about their disease and treatment. AMPSO has also formed several groups of self-support within patients and also within relatives. 2 hour meetings are held once a month in the Dermatology Department of the Hospital General de México to achieve patients education. Also in AMCPSO offices, two self-support meetings are held monthly.
Since 2004 the World Psoriasis Day has been celebrated by AMCPSO with a medical and patients Simposium.
Contact information: Asociación Mexicana contra la Psoriasis
Coordinator: RICARDO NAVARRO
Address: Tenayuca 55-204 México, D.F.
Tel: 525556012555
Email: amcpso@hotmail.com
Website: http://www.asociacionpsoriasis.com.mx
Language: Español
Portugal
No specific information for this country yet >> Propose one
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Patients association >> Visit this website
PSOPortugal - Associação Portuguesa da Psoríase
Created in 2005, 500 members.
In 2004 a group of people suffering from psoriasis gathered to establish an association. Now, this association is promoting and organizing campaigns with the purpose of informing the general public about the social and professional discrimination that affects those who suffer from this condition.
This discrimination is a consequence of the appearance of the affected skin which seriously conditions one’s life. Psoriasis is not yet known by the majority of people, thus, many patients cannot identify their own symptoms and consequently how to treat them.
PSOPortugal was formally established in February 2005 and is part of Europso.
Purposes of PSOPortugal
Inform patients and general public about psoriasis
Spreading information of the causes and effects of the disease in order to prevent discrimination
Persuade authorities that psoriasis is a chronic condition
Cooperate with the national and international scientific community in the investigation of a cure
Improve patients’ quality of life
Contact information: PSOPortugal - Associação Portuguesa da Psoríase
Coordinator: João Carlos Cunha
Address: R. Alberto de Sousa, nº6, Zona B do Rego,1600-002 Lisboa
Tel: +351 918460201
Email: info@poportugal.com
Website: http://www.psoportugal.com
Language: Português
Taiwan
Country population: 24 million
Number of dermatologists: 700
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National dermatological society >> Visit this website
Taiwanese Dermatological Association
Created in 1975, 700 members.
Education, Reserach, Patient Care
Contact information: Taiwanese Dermatological Association
Coordinator: Chih-Hung Lee
Address: 100 Shih-Chuan 1st Road, Kaohsiung, 807, Taiwan
Tel: +886-7-3121101ext6105
Fax: +886-7-3118901
Email: dermlee@gmail.com
Website: http://www.derma.org.tw
Language: 中文
Romania
No specific information for this country yet >> Propose one
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Patients association >> Visit this website
SPERANTA - Asociatia Pacientilor cu Psoariazis din Romania
Created in 2005, 30 members.
SPERANTA was created in 2005 by dermatologists to help their patients suffering from psoriasis.
Contact information: SPERANTA - Asociatia Pacientilor cu Psoariazis din Romania
Coordinator: A/Prof. George-Sorin Tiplica
Address: Dermatologie 2, Sos. Stefan cel Mare nr. 19-21, sector 2, Bucuresti, # 020125
Tel: 0040318052587
Fax: 0040318052587
Email: srd@rdsmail.ro
Website: http://www.srd.ro
Language: română
Nigeria
Country population: 140 Million
Number of dermatologists: 64
Dermatology associtions in Nigeria:
- Nigerian association of Dermatologists (National)
- Southwest Dermatology society (Regional)
- Lagos Dermatology society (Regional)
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National dermatological society >> Visit this website
Nigerian Association of Dermatologists
Created in 2004, 64 members.
The Nigerian Association of Dermatologists (NAD)
We the members of the above named association after due process have resolved to relate to each other for better understanding, cooperation and progress in our field of practice in dermatology and venereology.
i. The body of members shall be known as Nigerian Association of Dermatologists (NAD),
ii. The association includes all Dermatologists/Venereologists and residents in dermatology/venereology.
iii. Plastic surgeons and laboratory scientists and other health workers whose areas of disciplines are related to Dermatology and Venereology can be admitted as associate members.
The objectives of the association are as follows:
i. To improve the practice of Dermatology/venereology as a professional discipline in Nigeria and worldwide.
ii. To provide practice-oriented, scientifically-based, educational programs in all areas of Dermatology/Venereology.
iii. To promote continuing professional development of all Dermatologists
iv. To assist government in formulation of policies that will enhance adequate training and practice of dermatology at all levels.
v. To promote public awareness of skin health
vi. To cooperate with organizations which have similar aims and objectives.
President: Professor Emmanuel Kubeyinje
Secretary - General: Dr. Abel Onunu
Contact information: Nigerian Association of Dermatologists
Coordinator: Dr. Abel Onunu
Address: Dept. of Medicine, University of Benin Teaching Hospital, PMB 1111, Benin City, Nigeria
Tel: +234 80 33821991
Fax: -
Email: abelonunu@yahoo.com
Website: http://www.psoriasis-international.org/nad/
Language: English
Morocco
Country population: 30 000 000
Number of dermatologists: 500
A new group of psoriasis is under formation
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National dermatological society >> Visit this website
DERMATOMAROC
Created in 2007, 50visitors /day members.
DERMATOMAROC is the first and the only dermatological website in Morocco, with many clinical cases, rares skin diseases, and with a magnific atlas.
Contact information: DERMATOMAROC
Coordinator: Dr Douieb AK
Address: HPLM, 92000,Morocco
Tel: 0021261204376
Email: douieb@menara.ma
Website: http://www.dermatomaroc.com
Language: français
Australia
No specific information for this country yet >> Propose one
-
Patients association >> Visit this website
PSORIASIS AUSTRALIA INC.
Created in 1986, 500 members.
Psoriasis Australia Inc (formerly Psoriasis Assoc. of Victoria Inc) is a voluntary non-profit organisation supplying support and information for sufferers of psoriasis and psoriatic arthritis. We hold public meeting, produce newsletters, hold Psoriasis Awareness Week each year and support World Psoriasis Day. Patient pamphlets are available for distribution in G.P’s and Dermatologitsts rooms.
Psoriasis Australia has a Research Grant offered every two (2) years for work being done within Australia on psoriasis. This has proved very successful with applicants enquiring constantly about availability.
Contact information: PSORIASIS AUSTRALIA INC.
Coordinator: Helen McNair
Address: 334 High Street, ASHBURTON VIC 3147 Australia
Tel: +61 3 9813 8080
Fax: +61 3 9813 8080
Email: info@psoriasisaustralia.org.au
Website: http://www.psoriasisaustralia.org.au
Language: English
Saudi Arabia
Country population: 17 million
Number of dermatologists: 600
Malta
No specific information for this country yet >> Propose one
-
Patients association >> Visit this website
Psoriasis Association Malta
Created in 2004, 200 members.
Our site is both in english and maltese
Contact information: Psoriasis Association Malta
Coordinator: Lucienne Tabone
Address: PO Box 2 Malta
Tel: +356 21437606
Email: info@pam.org.mt
Website: http://www.pam.org.mt/
Language: English
Indonesia
No specific information for this country yet >> Propose one
-
Patients association >> Visit this website
Indonesian Psoriasis Care Foundation
Created in 2006, 400 members.
Indonesian Psoriasis Care Foundation or Yayasan Peduli Psoriasis Indonesia (YPPI)is a non-profit organization. Founded by some psoriasis and psoriatic-arthritis patients in 2006.
In 2004, some of us were involved in recuperating a psoriasis association.
Afterwhich we decided to build a new psoriasis organization, whose membership consists only of patients.
Contact information: Indonesian Psoriasis Care Foundation
Coordinator: Helena B. Intan
Address: 23 Niaga Hijau 9. Pondok Indah. Jakarta 12310
Tel: +62 21 7033 2425
Fax: +62 21 750 7739
Email: contact@psoriasisindonesia.org
Website: http://www.psoriasisindonesia.org
Language: Indonesia
Japan
Country population: 120,000,000
Number of dermatologists: 10,000
Japanese Dermatological Association
Japanese Society of Investigative Dermatology
We have also several psoriatic patients associations in Japan. The English names are not available.
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National psoriasis medical group >> Visit this website
Japanese Society for Psoriasis Research
Created in 1991, about 600 members.
In order to promote the research and clinical study of Japanese psoriasis patients, the Japanese Society for Psoriasis Research was founded in 1991.
Annual meeting: once a year held in various places in Japan.
About 600 active members are included.
We publish Proceedings of Annual Meeting of the Society every year.
Contact information: Japanese Society for Psoriasis Research
Coordinator: Depart. Dermatology, Asahikawa Medical College
Address: Midorigaoka-Higashi 2-1-1-1, Asahikawa, Japan
Tel: Japan 0166-68-2528
Fax: Japan 0166-68-2528
Email: kansen-admin@umin.ac.jp
Website: http://jspr.umin.jp/
Language: 日本語
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