Psoriasis International
Welcome to the International Psoriasis Network!
Through Psoriasis-international.org, you can meet, exchange, share, discuss and connect with the world psoriasis community!
International Psoriasis Network
How to create a national psoriasis group?
The Scientific and Advisory Boards
The portal Psoriasis-international.org
What is psoriasis-international.org?
How does psoriasis-international.org work?
Read about the Fondation René Touraine
History
Following the 2004 European Congress on Psoriasis in Paris, many participants seemed very interested in setting up psoriasis national groups.
The founding meeting of the international psoriasis network was held in Paris (Nov 18, 2005) between the countries willing to develop such national psoriasis groups and willing to connect these groups in an international network.
11 countries were able to send a representative and 9 additional countries have expressed a strong interest but were unable to come. The President of the EUROpean associations for PSOriasis patients (EUROPSO) participated as well.
To liven up this international network, it was proposed to:
- set up this website
- organize every 3 years an International Congress on Psoriasis in Paris
- publish a newsletter coming soon!
To read the report of the founding meeting, click here .
To learn more about the voted decisions regarding the organization of the international congress, click here .
How to join our network?
Dermatologists:
- If there is already a working group on psoriasis in your country with a website of its own, you can establish a link to it on the "Country Sites" section.
- If there is already a working group on psoriasis in your country but it does not have a website yet, you can create one for free on the "Country Sites" section.
- If in your country there isn’t a working group on psoriasis yet and if you wish to set one up, you can find here below information on how to form a national group on psoriasis and on the activities of these working groups.
Patient Associations:
- If your association already has a website of its own, you can establish a link to it on the "Country Sites" section.
- If your association does not have a website yet, you can create one for free on the "Country Sites" section.
If you have any questions regarding these procedures, do not hesitate to contact us at: weboffice@psoriasis-international.org
How to create a national psoriasis group?
Suggestions made at the International Psoriasis Network founding meeting, November 18, 2005
A national psoriasis group is a task force composed by dermatologists interested in psoriasis, whether from public or private practice, depending on the country.
National psoriasis groups develop various activities, such as clinical or therapeutical studies, national and international surveys, national guidelines, discussion on the good use of treatments, yearly national meetings, information to the patients, experience sharing at the International Psoriasis Congress.
The choice between a more formal or informal structure or type of organization will largely depend on the legal framework and tradition of each country. Here you can find some examples of how a psoriasis national group can be set up.
On an informal basis: a group of friends that start up a working group on psoriasis
On a formal basis:
- contact all dermatologists in your country and survey their interest in being part of a work group on psoriasis
- organise a national meeting to discuss the goals of the group, set up the agenda and schedule the actions to take
- seek some official recognition and contact the respective national society of dermatology to form a specific psoriasis work group within its structure.
Please notice that in any case, some form of official recognition is useful to obtain proper funding for the envisaged actions.
The Scientific and Advisory Boards
The International Psoriasis Network is animated by a Scientific Board and an Advisory Board that will see to the development of the network, and the steering of international relations and exchanges, as well as the network’s scientific activities. The members of both Boards are most welcomed to propose new ideas and projects that can contribute to liven the network and better connect the national psoriasis groups and associations.
THE SCIENTIFIC BOARD
The Scientific Board is composed by the coordinators of the national psoriasis groups who have agreed to participate. All the presidents or coordinators of the national groups are invited to join the Scientific Board of the network.
The members of the Scientific Board are in a privileged position to contact each other for all kind of collaborations, especially to promote the development of the network’s activities and the exchanges on psoriasis all around the world. Each member is responsible for the coordination of international collaborations between his or her country and the others, and of course for the animations around psoriasis at the national level.
The Scientific Board will help as well in the organization of the World Psoriasis Congress, taking place every three years. During the Congress, the coordinators of the national psoriasis groups shall meet to foresee the next Congress and to choose the national psoriasis group that will organize the following World Psoriasis Congress.
THE ADVISORY BOARD
The Advisory Board is composed of a permanent body of invited high-level experts that will see to the ethical and scientific development of the network and its website.
These experts will provide counseling on future collaborations with the industry, on new ideas/features to liven up the website www.psoriasis-international.org.
Moreover, the members will advise on the development of forums where dermatologists are encouraged to share the diversity of their opinion and experiences. Specifically, they shall contribute to the project “Psoriasis: Consensus & Controversies”, by discussing of the most valuable comments to be integrated in this “multi opinion book”.
The list of the scientific and advisory board members will be available soon.
If you have any questions, we would be happy to answer them.
Please, do no hesitate to contact us: weboffice@psoriasis-international.org
What is Psoriasis-international.org?
Psoriasis-international.org is a tool to promote the development of an international psoriasis network getting together dermatologists, rheumatologists, scientists, caregivers, patients and families involved in the psoriasis management.
How does Psoriasis-international.org work?
Psoriasis-international.org offers you several services:
This portal is the main section of the website. It fosters the websites of national psoriasis medical groups and of patient associations. Also, it allows those groups or associations that don’t have a website of their own, to create one for free.
The creation and administration of the site must be assigned to a webmaster of your choice, who may well be a member of your psoriasis group or association. The important is that he or she is able to manage and liven it. To proceed to the creation of your own website, please visit the "Country Sites" section and follow the instructions.
The portal of national sites gives you general information about the countries which are part of the network and it aims at:
- Fostering connection into each country between dermatologists and patients,
- Making easier to share information and to engage collaborations between countries.
To design and manage your own website, please use the website engine.
The website engine is a tool designed for your national psoriasis medical group and for your support association. The website engine will guide you to build a website in your national language or to create a link with your pre-existent website.
To use this section, you need to register. Please go to the website engine in the bottom of the homepage. If you have any question, please, do no hesitate to contact us: weboffice@psoriasis-international.org.
>> The International Links section
This section provides you links to psoriasis international sites.
>> The Consensus and Controversies section
This section is a forum about an opinion paper summarizing the views of world leading experts on the main issues raised by the management of psoriasis. This discussion is open to all psoriasis experts. We would be delighted to have your comments on the “Psoriasis: consensus & controversies” text!
This section gives you general information about psoriasis. It is glossary with direct links to Pubmed’s main publications on psoriasis.
>> The News section
Each member of the network can contribute with articles, events, works, etc., as long as the documents are provided in English. In this section, you will find :
- The news from the web office provides general information on the International Psoriasis Network and on the portal Psoriasis-international.org.
- In the events you will find a list of national and international psoriasis events such as conferences, meetings, consensus guidelines, proposals and results of studies...
- The articles section
- Lists articles about psoriasis published in the last 30 days.
- Highlightens articles of specific interest for the psoriasis community.
- The news from psoriasis medical groups gather the information sent by the national groups of dermatologists.
- The news from patients associations gather information from support associations.
When you wish to send information to the International Network, to other national groups or associations, please send it in English to the weboffice@psoriasis-international.org. We will then post your news in the news section.
The Fondation René Touraine
Psoriasis-international.org is an initiative of the Fondation René Touraine.
The Fondation René Touraine is a non-profit and a non-governmental organization. This Foundation is dedicated to support therapeutic progress in dermatology by connecting people. The Fondation René Touraine works through a European Scientific board composed, today, of opinion leaders from Austria, France, Germany, Italy, Netherlands, Portugal, Switzerland and United Kingdom.
The Fondation René Touraine is a founding member of the European Skin Research Foundation.
If you wish more information about our actions (fellowships, symposiums, etc.), please visit our website.
Legal disclaimer
Psoriasis-international.org is a freely accessible website. Its content is provided without any guarantee or liability of any kind.
Specifically, the founders and initiators of Psoriasis-international.org cannot be held responsible for and are not liable for the content of all websites created by third parties using the psoriasis-international.org website engine. The content of forum threads involves outside opinions that may be moderated by the weboffice of psoriasis-international.org., or by webmasters designated to adminitrate the websites created using the website engine.
Information relayed by psoriasis-international.org from the Pubmed website is in the public domain. However, restrictions may apply: please refer to Pubmed’s disclaimer
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Events 
News from medical groups
News from patients associations
Recent publications on psoriasis
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