Psoriasis International

Welcome to the International Psoriasis Network!

Through Psoriasis-international.org, you can meet, exchange, share, discuss and connect with the world psoriasis community!

International Psoriasis Network

Read about our history

How to join our network?

How to create a national psoriasis group?

The Scientific and Advisory Boards

The portal Psoriasis-international.org

What is psoriasis-international.org?

How does psoriasis-international.org work?

Read about the Fondation René Touraine

Read our legal disclaimer


History

Following the 2004 European Congress on Psoriasis in Paris, many participants seemed very interested in setting up psoriasis national groups.

The founding meeting of the international psoriasis network was held in Paris (Nov 18, 2005) between the countries willing to develop such national psoriasis groups and willing to connect these groups in an international network.

11 countries were able to send a representative and 9 additional countries have expressed a strong interest but were unable to come. The President of the EUROpean associations for PSOriasis patients (EUROPSO) participated as well.

To liven up this international network, it was proposed to:

To read the report of the founding meeting, click here .

To learn more about the voted decisions regarding the organization of the international congress, click here .


How to join our network?

Dermatologists:

  • If there is already a working group on psoriasis in your country with a website of its own, you can establish a link to it on the "Country Sites" section.
  • If there is already a working group on psoriasis in your country but it does not have a website yet, you can create one for free on the "Country Sites" section.
  • If in your country there isn’t a working group on psoriasis yet and if you wish to set one up, you can find here below information on how to form a national group on psoriasis and on the activities of these working groups.

Patient Associations:

  • If your association already has a website of its own, you can establish a link to it on the "Country Sites" section.
  • If your association does not have a website yet, you can create one for free on the "Country Sites" section.

If you have any questions regarding these procedures, do not hesitate to contact us at: weboffice@psoriasis-international.org


How to create a national psoriasis group?

Suggestions made at the International Psoriasis Network founding meeting, November 18, 2005

A national psoriasis group is a task force composed by dermatologists interested in psoriasis, whether from public or private practice, depending on the country.

National psoriasis groups develop various activities, such as clinical or therapeutical studies, national and international surveys, national guidelines, discussion on the good use of treatments, yearly national meetings, information to the patients, experience sharing at the International Psoriasis Congress.

The choice between a more formal or informal structure or type of organization will largely depend on the legal framework and tradition of each country. Here you can find some examples of how a psoriasis national group can be set up.

On an informal basis: a group of friends that start up a working group on psoriasis

On a formal basis:

  1. contact all dermatologists in your country and survey their interest in being part of a work group on psoriasis
  2. organise a national meeting to discuss the goals of the group, set up the agenda and schedule the actions to take
  3. seek some official recognition and contact the respective national society of dermatology to form a specific psoriasis work group within its structure.

Please notice that in any case, some form of official recognition is useful to obtain proper funding for the envisaged actions.


The Scientific and Advisory Boards

The International Psoriasis Network is animated by a Scientific Board and an Advisory Board that will see to the development of the network,  and the steering of international relations and exchanges, as well as the network’s scientific activities. The members of both Boards are most welcomed to propose new ideas and projects that can contribute to liven the network and better connect the national psoriasis groups and associations.

THE SCIENTIFIC BOARD

The Scientific Board is composed by the coordinators of the national psoriasis groups who have agreed to participate. All the presidents or coordinators of the national groups are invited to join the Scientific Board of the network.

The members of the Scientific Board are in a privileged position to contact each other for all kind of collaborations, especially to promote the development of the network’s activities and the exchanges on psoriasis all around the world. Each member is responsible for the coordination of international collaborations between his or her country and the others, and of course for the animations around psoriasis at the national level.

The Scientific Board will help as well in the organization of the World Psoriasis Congress, taking place every three years. During the Congress, the coordinators of the national psoriasis groups shall meet to foresee the next Congress and to choose the national psoriasis group that will organize the following World Psoriasis Congress.

THE ADVISORY BOARD

The Advisory Board is composed of a permanent body of invited high-level experts that will see to the ethical and scientific development of the network and its website.

These experts will provide counseling on future collaborations with the industry, on new ideas/features to liven up the website www.psoriasis-international.org.

Moreover, the members will advise on the development of forums where dermatologists are encouraged to share the diversity of their opinion and experiences. Specifically, they shall contribute to the project “Psoriasis: Consensus & Controversies”, by discussing of the most valuable comments to be integrated in this “multi opinion book”.

The list of the scientific and advisory board members will be available soon.

If you have any questions, we would be happy to answer them.

Please, do no hesitate to contact us: weboffice@psoriasis-international.org


What is Psoriasis-international.org?

Psoriasis-international.org is a tool to promote the development of an international psoriasis network getting together dermatologists, rheumatologists, scientists, caregivers, patients and families involved in the psoriasis management.


How does Psoriasis-international.org work?

Psoriasis-international.org offers you several services:

>> The National Sites section

This portal is the main section of the website. It fosters the websites of national psoriasis medical groups and of patient associations. Also, it allows those groups or associations that don’t have a website of their own, to create one for free.

The creation and administration of the site must be assigned to a webmaster of your choice, who may well be a member of your psoriasis group or association. The important is that he or she is able to manage and liven it. To proceed to the creation of your own website, please visit the "Country Sites" section and follow the instructions.

The portal of national sites gives you general information about the countries which are part of the network and it aims at:

  • Fostering connection into each country between dermatologists and patients,
  • Making easier to share information and to engage collaborations between countries.

To design and manage your own website, please use the website engine.

>> The Website Engine section

The website engine is a tool designed for your national psoriasis medical group and for your support association. The website engine will guide you to build a website in your national language or to create a link with your pre-existent website.

To use this section, you need to register. Please go to the website engine in the bottom of the homepage. If you have any question, please, do no hesitate to contact us: weboffice@psoriasis-international.org.

>> The International Links section

This section provides you links to psoriasis international sites.

>> The Consensus and Controversies section

This section is a forum about an opinion paper summarizing the views of world leading experts on the main issues raised by the management of psoriasis. This discussion is open to all psoriasis experts. We would be delighted to have your comments on the “Psoriasis: consensus & controversies” text!

>> The Keywords section

This section gives you general information about psoriasis. It is glossary with direct links to Pubmed’s main publications on psoriasis.

>> The News section

Each member of the network can contribute with articles, events, works, etc., as long as the documents are provided in English. In this section, you will find :

  • The news from the web office provides general information on the International Psoriasis Network and on the portal Psoriasis-international.org.
  • In the events you will find a list of national and international psoriasis events such as conferences, meetings, consensus guidelines, proposals and results of studies...
  • The articles section
    1. Lists articles about psoriasis published in the last 30 days.
    2. Highlightens articles of specific interest for the psoriasis community.
  • The news from psoriasis medical groups gather the information sent by the national groups of dermatologists.
  • The news from patients associations gather information from support associations.

When you wish to send information to the International Network, to other national groups or associations, please send it in English to the weboffice@psoriasis-international.org. We will then post your news in the news section.


The Fondation René Touraine

Psoriasis-international.org is an initiative of the Fondation René Touraine.

The Fondation René Touraine is a non-profit and a non-governmental organization. This Foundation is dedicated to support therapeutic progress in dermatology by connecting people. The Fondation René Touraine works through a European Scientific board composed, today, of opinion leaders from Austria, France, Germany, Italy, Netherlands, Portugal, Switzerland and United Kingdom.

The Fondation René Touraine is a founding member of the European Skin Research Foundation.

If you wish more information about our actions (fellowships, symposiums, etc.), please visit our website.


Legal disclaimer

Psoriasis-international.org is a freely accessible website. Its content is provided without any guarantee or liability of any kind.

Specifically, the founders and initiators of Psoriasis-international.org cannot be held responsible for and are not liable for the content of all websites created by third parties using the psoriasis-international.org website engine. The content of forum threads involves outside opinions that may be moderated by the weboffice of psoriasis-international.org., or by webmasters designated to adminitrate the websites created using the website engine.

Information relayed by psoriasis-international.org from the Pubmed website is in the public domain. However, restrictions may apply: please refer to Pubmed’s disclaimer

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News from the web office > Events > News from medical groups > News from patients associations > Recent publications on psoriasis >

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2008/07/11
News from medical groups

Japan, newest country in the Psoriasis International Network

In order to promote the research and clinical study of Japanese psoriasis patients, the Japanese Society for Psoriasis Research was founded in 1991 and counts now with some 600 active members. The Japanese Society holds once a year an annual (...)

> Read more...
2008/07/11
News from patients associations

Mexico patients association - AMCPSO joins Psoriasis International

The Asociación Mexicana contra la psoriasis (AMCPSO) was created in 2003 by patients with psoriasis and their relatives with the purpose of helping each other with the burden of the illness and improve their quality of life. In AMCPSO’s website (...)

> Read more...
2008/07/10
News from medical groups

FIRST HUNGARIAN NATIONAL PSORIASIS CONVENTION AND OPEN DAY

FIRST NATIONAL PSORIASIS CONVENTION AND OPEN DAY (31ST MAY 2008 SZEGED, HUNGARY) - SUMMARY - The Psoriasis Club of Szeged (Hungary) composed and published a proclamation on occassion of the „World Psoriasis Day 2007”, that declared, that the (...)

> Read more...
2008/07/04
News from medical groups

The Psoriasis Society of Israel - new member of Psoriasis International Network!

Created in 2008, the Psoriasis Society of Israel is a newly developed group composed of dermatologists from several medical centers in Israel whose clinical and research field of interest is psoriasis. The aim of the group is to enrich the (...)

> Read more...
2008/07/04
News from medical groups

THE PSOCARE PROJECT IN ITALY 2005-2007

The Psocare project has been developed within the Italian National Health System as a nationwide outcome study of patients receiving for the first time in their life a new systemic treatment for psoriasis [1]. The main objectives are the (...)

> Read more...
2008/06/25
News from patients associations

A.DI.PSO Italy is now member of the Psoriasis International network

A.DI.PSO. (Association for the Defence of Psoriasis Patients) was founded in November, 1989, with the aim of providing positive assistance to people affected by psoriasis. The main objective of A.DI.PSO. has always been to increase public (...)

> Read more...
2008/06/25
Events

5th International Congress "Psoriasis - From Gene to Clinic"

The 5th International Congress "Psoriasis - From Gente to Clinic" will take place at The Royal College of Physicians, in London, UK. The Congress will be held from 4th-6th December, 2008. It is organised by the British Association of (...)

> Read more...
2008/06/25
News from patients associations

The Indonesian Psoriasis Care Foudantion joins Psoriasis International

The Indonesian Psoriasis Care Foundation or Yayasan Peduli Psoriasis Indonesia (YPPI) is a non-profit organization, founded in 2006 by some psoriasis and psoriatic arthritis patients. In 2004, some of the 400 current members were involved in (...)

> Read more...
2008/06/16
Events

“XIIIth COSMODERM – Joint Meeting of ESCAD and the Hellenic Society of Dermatology and Venereology”

The  XIIIth COSMODERM – Joint Meeting of ESCAD and the Hellenic Society of Dermatology and Venereology will be held on 12-14 December 2008 in Athens, Greece, under the patronage of the European Society for Cosmetic and Aesthetic Dermatology. (...)

> Read more...
2008/06/12
News from patients associations

Psoriasis Association Malta on Psoriasis-international.org

Created in 2004, the Psoriasis Association Malta is a non-profit organization managed by volunteers. Its mission is to improve the quality of life of psoriasis and psoriatic arthritis sufferers through education, information and increased (...)

> Read more...
2008/06/10
News from medical groups

Saudi Arabia, new partner country of the Psoriasis International Network

Created in 2008, the Saudi Psoriasis Group is a newly developed group whose main concern is psoriasis, and that has decided to join the International Psoriasis Network. It welcomes any physician interested in psoriasis to join the group and (...)

> Read more...
2008/06/10
News from patients associations

Psoriasis Australia Inc, a new partner association in the network Psoriasis International

Psoriasis Australia Inc (formerly Psoriasis Assoc. of Victoria Inc) has referenced its website in Psoriasis-international.org, and you can now visit it in the section “Country Sites”. This is a voluntary non-profit association created in 1986 and (...)

> Read more...
2008/06/10
News from medical groups

The Nigerian Association of Dermatologists (NAD), new member of Psoriasis International

The Nigerian Association of Dermatologists (NAD), created in 2004, has decided to join the network Psoriasis International. The NAD is engaged in the professional development of dermatologists, in providing technical assistance to public (...)

> Read more...
2008/06/10
News from medical groups

DERMATOMAROC linked with Psoriasis-international.org!

DERMATOMAROC is the first and the only dermatological website in Morocco, with many clinical cases, rares skin diseases, and with a magnific atlas. It was created in 2007 and counts today with an average of 50 visitors per day. For further (...)

> Read more...
2008/06/10
News from patients associations

SPERANTA, the Romanian Psoriasis Patient Association joins the International Psoriasis Network

SPERANTA - Asociatia Pacientilor cu Psoariazis din Romania was created in 2005 by dermatologists to help their patients suffering from psoriasis. It has recently joined Psoriasis International. For further information on SPERANTA, please visit (...)

> Read more...
2008/05/29
News from medical groups

Psocare, the Italian psoriasis network joins Psoriasis International

Psocare, the Italian network of dermatological centers devoted to psoriasis has referenced its website in Psoriasis-international.org. You can now visit it in the section “Country Sites”. Created in 2005, this programme was promoted by the (...)

> Read more...
2008/05/26
News from patients associations

PSOPortugal, new member of Psoriasis International

PSOPortugal - Associação Portuguesa da Psoríase has referenced its website in Psoriasis-international.org, and you can now visit it in the section “Country Sites”. Established in 2005 and gathering some 500 members, PSOPortugal organizes campaings (...)

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2008/05/26
News from medical groups

The Taiwanese Dermatological Association joins the Psoriasis International network

The Taiwanese Dermatological Association has referenced the website of Psoriasis Taiwan Association in Psoriasis-international.org. You can now visit it in the section “Country Sites”. Created in 1975, the Taiwanese association focus on (...)

> Read more...
2008/05/19
News from medical groups

The Croatian Psoriasis Working Group’s website is now available!

The Croatian Psoriasis Working Group has joined the Psoriasis International network on last April and started creating its website through the network’s webiste engine. We are very proud to announce that this website is now ready and you can (...)

> Read more...
2008/05/09
News from patients associations

GIPSO asbl becomes member of the Psoriasis International network

GIPSO asbl has referenced its website in Psoriasis-international.org, and you can now visit it in the section “Country Sites”. Founded in 1990, GIPSO promotes public awareness and understanding about psoriasis and psoriatic arthritis and the (...)

> Read more...